So, after my last post the doctor insisted that Bree stay overnight. We had to do some juggling because I had a doctor appt that I could NOT miss (whole other story) so Adam stayed overnight with Bree, but had to leave at 300 in the morning to make it to work by 400. So Bree was by herself from 300 in the morning to 1000 when Adam was able to make it back.
However, Bree is now home! We are being sent home on a continuous feed of 22 ml/hr for a few days (probably until Sunday) and then slowly go back to our 75mls at 8, 11, 2, and 5. (then the night drip) We are so happy to be together as a family again under the same roof! Thank you for all your prayers and well wishes, we are very blessed to have you all as our friends and our family!
Friday, April 10, 2009
Thursday, April 9, 2009
Cell Phone Picture Post
Sleeping in Mama and Dada's bed
First tast of cereal!
Flashing 'gang' signs (as Grandma Gonce would say)
"WOW!"
She put them on all by herself! (can you tell?)
My Chubby Wubby
Self portrait
Beautiful girl
Pretending to talk on the phone (it's really her play keys)
Mama and "Ry-ry"
Tiny shopping cart...we improvised.
My flower child!
Mama shot this photo of Adam and I
Sleeping in her big girl bed
Poop face! Here's the scoop!
Okay, some light is shining on the horizon...the doctor came in and we had a talk. We are going to try a low continuous feed all day long and see how she does. If she shows signs of being hungry she will be allowed to nipple whatever she wants to. We will be consulting a nutritionist to decide how much volume she should be given today and for how much an hour. However, she was able to take a bottle while we are waiting for the nutritionist and she drank 17cc's before zonking out. She's been fussing all morning and is tired so I wasn't expecting her to take much. She took enough to where her tummy felt okay, and she promptly went to sleep.
I am going to try and push for us to be discharged tonight if she does well with this. Her tummy is the only problem right now and I want to get out of here asap before she catches something that is worse.
I am going to try and push for us to be discharged tonight if she does well with this. Her tummy is the only problem right now and I want to get out of here asap before she catches something that is worse.
Something new
Okay, so here's the latest scoop: Bree no longer screams in pain when moved, has no fever and her petechiae are getting better. However, her nose is stuffier and now requires suctioning from the suction they have here at the hospital (bulb syringe wasn't getting it out anymore) and she is no longer tolerating her feeds. She throws up every other feed, and runs a big risk of aspiration when she does so. If she does aspirate it can lead to pneumonia, which then will lead to a longer hospitilization.
So, last night they did not give her her night drip just to make sure that her tummy will be empty today. I am still awaiting Dr. Hayes to come around (about 930) to figure out what the plan is for feeds today. I will update when I know more.
So, last night they did not give her her night drip just to make sure that her tummy will be empty today. I am still awaiting Dr. Hayes to come around (about 930) to figure out what the plan is for feeds today. I will update when I know more.
Wednesday, April 8, 2009
It must be pouring
Update! We were moved rooms so now we are in room 507, bed A at Phoenix Children's Hospital. We were moved because we found out Bree has what is called ParaInfluenza Type 3. Here's a link to where you can learn more about it:
http://www.cdc.gov/ncidod/dvrd/revb/respiratory/hpivfeat.htm
It was explained to me that it is similar to RSV, just slightly different.
However, this is not what is causing the petechiae so she is continuing to receive the antibiotics until we have a more definate answer of what is going on. For all we know it could just be a combination of things that are all contributing.
We will be here at least until Friday morning at best. A big thanks to Anneke for bringing me some snacks, a magazine and Bree a super cute bumblebee outfit! It brightened my day and whenever Bree wakes up, I am sure the sight of her new outfit will make her day better too!
http://www.cdc.gov/ncidod/dvrd/revb/respiratory/hpivfeat.htm
It was explained to me that it is similar to RSV, just slightly different.
However, this is not what is causing the petechiae so she is continuing to receive the antibiotics until we have a more definate answer of what is going on. For all we know it could just be a combination of things that are all contributing.
We will be here at least until Friday morning at best. A big thanks to Anneke for bringing me some snacks, a magazine and Bree a super cute bumblebee outfit! It brightened my day and whenever Bree wakes up, I am sure the sight of her new outfit will make her day better too!
As Nana said "If it's not one thing, it's another"
So...we are back in our home away from home. That's right, Bree is back in the hospital. Yesterday morning, when I got her up from sleeping at night her temp was 102.8 and she cried in pain everytime I moved her. (particularly her neck or trunk area). However, after a dose of tylenol her temp went down to 101 ish and she rested a little more comfortable. The cries in pain went down to whimpers, and she would at least sleep on my shoulder. That was the only position she was comfy in, up on my shoulder. Any attempt to lay her down resulted in screaming pain.
About noon, I noticed three little petechiae on her lower left leg. (petechiae are like little pinpoints of blood just under the skin) We kept an eye on them since her discomfort was not getting any better and when we were getting her ready for bed the three had multiplied to twenty. SO...off the hospital I went with Bree while Adam stayed home with Riley.
The hospital had the same concern as I did: Meningitis. They drew blood, urine, and even went as far as doing a lumbar puncture. For those of you who don't know, a lumbar puncture is where they bend the person over as far as they can in a sitting position, and insert a hollow needle into the space between the vertebrae in order to get some cerebral spinal fluid for testing. This was HORRIBLE to watch! I was okay with the needle, but when they were bending her over she was having such a hard time catching her breath because she was so upset and had a stuffy nose on top of that.
Thankfully all the labs came back a-okay, and even really don't show signs of her being sick. My child, the medical mystery! They started her on some strong antibiotics just to be safe, and she continues to recieve those every twelve hours as of right now.
So, as of this morning they have ruled out meningitis (Praise the Lord!) and are going to test for a few different types of viruses. I will update when I know more...
By the way, Riley still has a yucky nose and a slight cough but our friend Danielle was awesome enough to watch Riley so Adam could go to work today. Needless to say, we owe her some babysitting so her and Pat can go out for a night on the town!
About noon, I noticed three little petechiae on her lower left leg. (petechiae are like little pinpoints of blood just under the skin) We kept an eye on them since her discomfort was not getting any better and when we were getting her ready for bed the three had multiplied to twenty. SO...off the hospital I went with Bree while Adam stayed home with Riley.
The hospital had the same concern as I did: Meningitis. They drew blood, urine, and even went as far as doing a lumbar puncture. For those of you who don't know, a lumbar puncture is where they bend the person over as far as they can in a sitting position, and insert a hollow needle into the space between the vertebrae in order to get some cerebral spinal fluid for testing. This was HORRIBLE to watch! I was okay with the needle, but when they were bending her over she was having such a hard time catching her breath because she was so upset and had a stuffy nose on top of that.
Thankfully all the labs came back a-okay, and even really don't show signs of her being sick. My child, the medical mystery! They started her on some strong antibiotics just to be safe, and she continues to recieve those every twelve hours as of right now.
So, as of this morning they have ruled out meningitis (Praise the Lord!) and are going to test for a few different types of viruses. I will update when I know more...
By the way, Riley still has a yucky nose and a slight cough but our friend Danielle was awesome enough to watch Riley so Adam could go to work today. Needless to say, we owe her some babysitting so her and Pat can go out for a night on the town!
Monday, April 6, 2009
"Just a bug"
So, apparently what happens in Vegas doesn't stay in Vegas. Riley caught a bug in Vegas, and brought it home with her, and then proceeded to share it with her sister. Both girls had a fever of 101.8 for 4 days, and diarrhea on top of that. On Sunday, Adam caught the bug as well so I had to rush home from work so that I could take care of three diarrhea pooping, cranky people. Also on Sunday, Riley and Bree developed a rash around their mouth and a little around their eyes. Riley developed a cough that sounds horrible, but luckily Bree has been spared the cough so far. (Fingers crossed!) So, I decided after a week of sickness and changing symptoms that a doctor visit was in order.
So today at 1110 we were at the doctors office (me and the girls), and we were told that it was "just a bug" and it should pass soon. In the meantime, no playdates or being around other kiddos just so we can keep all our friends 'safe'. Dr. Pham was very impressed with the girls' weights which were: Riley: 27.8 pounds and Bree: 11.8 pounds! Woo hoo!!! Even though they are sick, they are still gaining weight. He was also happy that they both were well hydrated and were eating in some form (Riley is struggling a bit).
Please be praying for this sickness to leave our house! (and for me not to get sick!) As you know, a stay at home Mama doesn't get any sick days!
So today at 1110 we were at the doctors office (me and the girls), and we were told that it was "just a bug" and it should pass soon. In the meantime, no playdates or being around other kiddos just so we can keep all our friends 'safe'. Dr. Pham was very impressed with the girls' weights which were: Riley: 27.8 pounds and Bree: 11.8 pounds! Woo hoo!!! Even though they are sick, they are still gaining weight. He was also happy that they both were well hydrated and were eating in some form (Riley is struggling a bit).
Please be praying for this sickness to leave our house! (and for me not to get sick!) As you know, a stay at home Mama doesn't get any sick days!
Humming in the night
Both the girls have been sick the last week, and last night Riley was woken up by the sound of the garage door opening when Adam left for work at 315 inthe morning. I let her try to fuss it out, but after a half an hour of crying she had worked herself into such a fit that she was coughing really hard in between crying. I went and got her, and brought her into bed with me.
We snuggled and with her little body pressed against mine, and her head resting on my arm I began to hum Brahm's Lullaby. (I have done this with both of my girls since they were born, so the tune is very familiar to them.) Like the sweet little girl that she is, Riley began to calm down and before I knew it I started to hear her humming as well. She was not humming the tune, but when I would hum I would hear her hum right after.
Our humming filled the room until she drifted off to sleep in my arms.
We snuggled and with her little body pressed against mine, and her head resting on my arm I began to hum Brahm's Lullaby. (I have done this with both of my girls since they were born, so the tune is very familiar to them.) Like the sweet little girl that she is, Riley began to calm down and before I knew it I started to hear her humming as well. She was not humming the tune, but when I would hum I would hear her hum right after.
Our humming filled the room until she drifted off to sleep in my arms.
My Big Little Girl
Bree is a big girl now! Okay, so not a super super big girl, but she is no longer sleeping on our room at night. We set up her crib, moved all her equipment (apnea monitor and feeding pump, IV pole to go with it, and the plugs that go along with those) and she got to be all set up in her own bed. Funny how quickly you can forget how small a baby can look in a giant crib. I took some pictures of course, but they have taken a number in my "wait for editing" line.
Bree slept great, and we are now going to start working on getting both girls into bed by seven. Due to Bree's 10 hour night drip, she sleeps through the night. So, I am one lucky Mama to have two little girls who sleep from 7 at night to 6 in the morning...I am looking forward to catching up on sleep here soon!
Bree slept great, and we are now going to start working on getting both girls into bed by seven. Due to Bree's 10 hour night drip, she sleeps through the night. So, I am one lucky Mama to have two little girls who sleep from 7 at night to 6 in the morning...I am looking forward to catching up on sleep here soon!
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