Today we had a pediatrician appt to talk about appetite stimulant for Bree. Our pediatrician does not reccomend it. I was counting on her backing me for the support of it, but that's okay.
She gave us the go ahead to start trying to wean Bree off of her g tube. Right now Bree eats 3 ritz crackers a day, and drinks about an ounce of whole milk. I think a lot of her lack on wanting to eat is because she is not hungry. How could she be when her breakfast tube fed meal is about 400 calories, and her lunch and dinner tube feeds are 300 each along with a night drip that is 180 calories. That is 1180 calories a day, which is what she needs to be getting. So, if you are getting all the calories you need, you would be full, right? So why would you need to eat by mouth? You have no reason to.
So, Bree will be not receiving any tube feeds during the day for the next 4 days. That is our trial period to see if she is ready to start eating by mouth. She will still be getting her night feed in order to assure she is staying hydrated. I am very hesitant and nervous about this, but I know it's the right thing to do. She's never going to get off of her tube unless we give her the opportunity to show us.
Please be praying for her, and for us as we embark on this adventure together. I will be sure to keep everyone updated.
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I am praying for her! This is exciting! We may be headed in the G-tube direction. Though I am not sold on the idea yet, it is helpful to see kids like Bree who thrived and are ready to kick it to the curb.
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