So Bree has been admitted to PCH. We went into the ER last night (at 6pm) because Bree was not making tears anymore, was getting to be inconsolable and extremely fussy again. After three hours of sitting in an initial exam room we were put into an ER room to wait to talk to the Doctor. Dr. Hanson came in, took our info, and went to go consult with a colleague. His colleague came in, talked with us and they then decided we were going to be admitted to the hospital.
Bree was given every type of blood test imaginable, and even had a urine sample and stool sample taken. They started her on fluids and we all laid down to rest for the night (at midnight). At four in the morning we were awakened to be told that there was a room for us. So we packed up, and moved to room 310, bed B. We have the bed by the window so we have a lovely view of the roof of the other part of the building along with the new construction area. I am sure that during the week it will supply me with some sort of entertainment. Bree has three wires (two on her apnea monitor, one for her oximeter), and two tubes (oxygen, and then I.V.).
So far this morning, we have seen Dr. Elliot, the social worker, and the dietician. We are waiting to see the GI people (gastro intestinal). We are probably going to make a choice on where we are putting her feeding tube. Our pediatrician expressed concern over having it in her nose since she is already on oxygen. Babies are very much nose breathers and having just another thing blocking her nose is likely to make it hard for her to blow off the CO2 her body creates. So, we are going to be making a decision on what to do. I know that they can put one surgically into her stomach, but the idea of another surgery, no matter how small, just freaks me out.
HUGE THANK YOU to Cheri and to Aleasha for helping us out with Riley. Cheri watched Riley last night, and Aleasha is taking tonight. Obviously, if I had to do this alone I would, but it makes it easier to have Adam here for support and to be able to consult with him in person rather than over the phone. Without the friends that we have, we would be lost and floundering in this whole ordeal (and ones past...and experiences to come). We have truly made friends here that are like family to us. You know who all of you are....from the bottom of our hearts: thank you.
Small update: The nurse just came and took Bree's tempature and it was normal this morning at eight. It is now 99.7, so she now has a fever. :( Please be praying for healing of her little body. Our God is a big God of miracles...we love him and thank him for all that he does!
Saturday, January 24, 2009
Friday, January 23, 2009
Hospitals = Help...right?
Once again, we are in a position that I wish upon no parent. The Phoenix Children's Hospital is so full that they do not have a bed for Bree so we are stuck waiting until one becomes available.
As you all know, Bree has never really been able to "do her doody" on her own. She had to be given suppositories every three days for her to go. Well, Saturday night (at 1:30 am!!) she pooped all on her own...everywhere. We were elated and didn't even think that she could be sick. Well, she pooped Sunday, Monday, Tuesday and Wednesday. All diarrhea. :( Starting Wednesday morning, she was throwing up everything that was given to her. She kept one bottle down in the afternoon so I decided to go grocery shopping (or we were eating ketchup and mayo for dinner).
Our AWESOME friend Aleasha, was brave and watched Riley for us while I went shopping with Bree. Normally, when I go grocery shopping Bree is lulled by the motion of the cart and sleeps the whole time. Not this time. She SCREAMED!!! The whole time. No matter what I did. At first the pacifier was soothing her, but towards the end it was't even working. I paid for my groceries and pushed the cart out to the car. I loaded the groceries then sat in the front seat with Bree trying to feed her, since I thought that was the issue.
While feeding her she looked extremely pale, so I bumped up her oxygen from 0.1 to 0.3 to see if it would make a difference. Nope. Didn't make any difference at all. So I called Adam and upon his recommendation I called the pediatrician. We were told to high tail it to PCH. I called Aleasha, she agreed to watch Riley for us overnight and Adam left work and we headed home to drop off groceries and to get formula and what not for Bree.
Upon arrival at PCH there were a TON of people there. Standing room only type of busy. Upon seeing us sit down with such a small child, a nurse came and took our information and took us back into an exam room so that Bree was not exposed to any of the sicknesses in the waiting room. For that, I am truly grateful. It just went down hill from there. I told them all of her symptoms and to make a long story short all they did was take her blood, test for electrolyte balance, give her fluids and sent us home with a diagnosis of diarrhea. Are you serious??? Never mind that she spits up whatever you give her, or that she doesn't stop crying unless sleeping...she just has diarrhea. UGH!
We followed up with Dr. Pham the next morning and he did not seem pleased that the hospital hadn't even called him. (he was on call with them) He told us that if they had called him, he would have had them keep her. He said he was calling the hospital to have her admitted. We were told to take her home, try and get as much fluids in her as we could and to wait. Wait for the hospital to call us and let us know when to bring her in.
That is where we are now. We might be going into the hospital tonight to get her fluids, but that's all they will do until they have a bed for her. I am very frustrated and angry, even though I understand there are other sick kids. It is scary to see Bree going from extremely pale when sleeping, hard to rouse and when she is awake, she is crying, flushed (like when you have a fever), just not happy at all. She does not have a fever, but is not eating well at all. She isn't putting out urine well at all. (one wet diaper in 12 hours) We are waiting, hoping and praying...because that is all we can do right now.
As you all know, Bree has never really been able to "do her doody" on her own. She had to be given suppositories every three days for her to go. Well, Saturday night (at 1:30 am!!) she pooped all on her own...everywhere. We were elated and didn't even think that she could be sick. Well, she pooped Sunday, Monday, Tuesday and Wednesday. All diarrhea. :( Starting Wednesday morning, she was throwing up everything that was given to her. She kept one bottle down in the afternoon so I decided to go grocery shopping (or we were eating ketchup and mayo for dinner).
Our AWESOME friend Aleasha, was brave and watched Riley for us while I went shopping with Bree. Normally, when I go grocery shopping Bree is lulled by the motion of the cart and sleeps the whole time. Not this time. She SCREAMED!!! The whole time. No matter what I did. At first the pacifier was soothing her, but towards the end it was't even working. I paid for my groceries and pushed the cart out to the car. I loaded the groceries then sat in the front seat with Bree trying to feed her, since I thought that was the issue.
While feeding her she looked extremely pale, so I bumped up her oxygen from 0.1 to 0.3 to see if it would make a difference. Nope. Didn't make any difference at all. So I called Adam and upon his recommendation I called the pediatrician. We were told to high tail it to PCH. I called Aleasha, she agreed to watch Riley for us overnight and Adam left work and we headed home to drop off groceries and to get formula and what not for Bree.
Upon arrival at PCH there were a TON of people there. Standing room only type of busy. Upon seeing us sit down with such a small child, a nurse came and took our information and took us back into an exam room so that Bree was not exposed to any of the sicknesses in the waiting room. For that, I am truly grateful. It just went down hill from there. I told them all of her symptoms and to make a long story short all they did was take her blood, test for electrolyte balance, give her fluids and sent us home with a diagnosis of diarrhea. Are you serious??? Never mind that she spits up whatever you give her, or that she doesn't stop crying unless sleeping...she just has diarrhea. UGH!
We followed up with Dr. Pham the next morning and he did not seem pleased that the hospital hadn't even called him. (he was on call with them) He told us that if they had called him, he would have had them keep her. He said he was calling the hospital to have her admitted. We were told to take her home, try and get as much fluids in her as we could and to wait. Wait for the hospital to call us and let us know when to bring her in.
That is where we are now. We might be going into the hospital tonight to get her fluids, but that's all they will do until they have a bed for her. I am very frustrated and angry, even though I understand there are other sick kids. It is scary to see Bree going from extremely pale when sleeping, hard to rouse and when she is awake, she is crying, flushed (like when you have a fever), just not happy at all. She does not have a fever, but is not eating well at all. She isn't putting out urine well at all. (one wet diaper in 12 hours) We are waiting, hoping and praying...because that is all we can do right now.
Thursday, January 22, 2009
PCH here we come!
Prayers please! Miss Bree is going back into the hospital...she has had significant problems with weight gain since coming home and now she is spitting up whatever she is fed, is having diarrhea, and is EXTREMELY fussy! Our pediatrician is calling Phoenix Children's Hospital as we speak to try and get her admitted. Luckily, Danielle is willing to watch Riley for us during the week so that I can be at the hospital with Bree...(THANK YOU DANIELLE!)
There is a lot more to this story than I am telling, and I will tell it when I have the time. Right now I am trying to get meals laid out for next week (so Adam and Riley aren't living off of Mickey D's), Bree packed, and myself too....along with five hundred other things I have running through my mind!
There is a lot more to this story than I am telling, and I will tell it when I have the time. Right now I am trying to get meals laid out for next week (so Adam and Riley aren't living off of Mickey D's), Bree packed, and myself too....along with five hundred other things I have running through my mind!
Wednesday, January 21, 2009
Family
Our family is doing pretty good. We are having the usual bumps and surprises that come up, but besides that we are holding it together.
Bree will be getting a feeding tube again this week. She should be taking at least 60 cc's a feeding now and she is on average taking 45 cc's. So, we are going to let her eat what she can out of the bottle, and when she runs out of steam, we are going to put the rest into the feeding tube. So, during the day we will let her feed on demand like we have been (about every 2.5 hours) and then at night we need to get her back on a schedule of every three hours. This will continue until she is gaining weight appropriately and eating her feedings all by bottle. We will be having a nurse come to the house to put the tube in and to teach us about it. Hopefully this happens sooner than later, but I will find out today when the pediatrician calls.
Bree also got her synagis shot yesterday. This is a shot to help prevent RSV. Hopefully it works and we do not have to go through what we went through with Riley last year. (For those of you who don't know, Riley had RSV last year and was hospitalized for a week with it!)
Riley is growing and expanding her vocabulary like crazy. She now says "E-tan" (Ethan), "reeeee" (Bree), "eat" (no explanation needed), and so many more! I can't think of them off the top of my head. She is also starting to 'talk in sentences'. She is just making up goobly gook noises to make it sound like she is making sentences. She does this most when she is sitting down looking at books and reading to herself. After "reading" her book she exclaims "ALLLL DOONE!" and gets out of her rocking chair to get another one.
Since she is showing interest in actually reading books we are starting a bed time routine of bath, (ONE) book, prayers, and bed. Quick and easy, but it allows her time to settle down.
Speaking of routines, Adam and I have gotten together and even made a schedule for ourselves. It feels like we have just been co-existing as of lately. We take care of kids, get them into bed, veg on tv, then not too shortly after the kiddos, we hit the sack ourselves. So to help us feel more connected with one another we are starting out small with a game night on Fridays, and a movie night on Mondays. (Movie Monday, Fun Friday) We hope to continue this even until the girls can start to participate.
Our anniversary is coming up as well (FEB 5TH!) and we have had some friends offer to be brave and watch Bree and Riley for us so we can have a few hours to go out and celebrate our 3 years of being married. A lot has happened in those three years! Moving states (twice), and two kids later we are still holding strong. We have our issues just like everyone else, but it is our love for one another that brings us back together and we work out whatever the issue was.
Hope this finds everyone happy healthy and in love with life!
Bree will be getting a feeding tube again this week. She should be taking at least 60 cc's a feeding now and she is on average taking 45 cc's. So, we are going to let her eat what she can out of the bottle, and when she runs out of steam, we are going to put the rest into the feeding tube. So, during the day we will let her feed on demand like we have been (about every 2.5 hours) and then at night we need to get her back on a schedule of every three hours. This will continue until she is gaining weight appropriately and eating her feedings all by bottle. We will be having a nurse come to the house to put the tube in and to teach us about it. Hopefully this happens sooner than later, but I will find out today when the pediatrician calls.
Bree also got her synagis shot yesterday. This is a shot to help prevent RSV. Hopefully it works and we do not have to go through what we went through with Riley last year. (For those of you who don't know, Riley had RSV last year and was hospitalized for a week with it!)
Riley is growing and expanding her vocabulary like crazy. She now says "E-tan" (Ethan), "reeeee" (Bree), "eat" (no explanation needed), and so many more! I can't think of them off the top of my head. She is also starting to 'talk in sentences'. She is just making up goobly gook noises to make it sound like she is making sentences. She does this most when she is sitting down looking at books and reading to herself. After "reading" her book she exclaims "ALLLL DOONE!" and gets out of her rocking chair to get another one.
Since she is showing interest in actually reading books we are starting a bed time routine of bath, (ONE) book, prayers, and bed. Quick and easy, but it allows her time to settle down.
Speaking of routines, Adam and I have gotten together and even made a schedule for ourselves. It feels like we have just been co-existing as of lately. We take care of kids, get them into bed, veg on tv, then not too shortly after the kiddos, we hit the sack ourselves. So to help us feel more connected with one another we are starting out small with a game night on Fridays, and a movie night on Mondays. (Movie Monday, Fun Friday) We hope to continue this even until the girls can start to participate.
Our anniversary is coming up as well (FEB 5TH!) and we have had some friends offer to be brave and watch Bree and Riley for us so we can have a few hours to go out and celebrate our 3 years of being married. A lot has happened in those three years! Moving states (twice), and two kids later we are still holding strong. We have our issues just like everyone else, but it is our love for one another that brings us back together and we work out whatever the issue was.
Hope this finds everyone happy healthy and in love with life!
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