That seems to be the case in our life. The only time I have excessive amounts of time has been when Bree is in the hospital. Yup...she is again in the hospital, except this time no one has any idea of what is going on. She presented with stroke like symptoms on Tuesday and we went to PCH...long story short, they were not taking me seriously and we ended up signing out AMA (against medical advice) and going to a different children's hospital.
This hospital (Cardon's) has been great at helping us. Her MRI, CT scan and spinal tap have all come back fine so we have no answers. At her worst she could not hold herself up and would slide to the left. She could barely get out words she used to be able to say with ease. She could not drink without spilling immensely and/or choking. She has slowly improved....