Good morning all...
Bree is doing slightly better than last night. We were up until eleven calling and getting updates on her. We left the hospital at five, and she was stable and her oxygen saturations were around 85. By the time we called at six thirty her O2 sats were dropping again. By eight o'clock her O2 sats were back in the 50's, and that was at 100% oxygen.
They tried a new drug, which is an inhaled medication that helps the muscles in her lungs relax to allow the air in, and for the oxygen to exchange. This is called "nitrious oxcide" (once again, I don't know if it's spelled correctly, but that's what it sounds like). What we were told is that some kids do not respond at all to this and if they do respond it is a quick response. Of course, our child was the exception and she responded slowly. However, any response was good and after a while she was oxygenating much better. She is now doing so well they were able to wean her off a little bit of the oxygen so when I called this morning at six she was at 78% oxygen.
She is on a constant morphine drip to help keep her sedated to reserve her energy for healing and getting better. She is on dopamine, which helps her blood pressure and takes some strain off of her heart. Other than those two, I believe she is only on her usual TPN, and lipids.
Adam and I had to have a hard talk last night that I do not wish on anyone. We had to talk about if she continued to not respond to treatments (which she has since then), at what point do we want to say "enough"? If she coded again, would we want them to do CPR again? Making a decision about your child's life or death is the hardest conversation any parent would have to have. After consulting with parents and our pastor, we did come to some decisions, and some of them are on a situational basis.
Bree is such a little fighter, and I believe that she is a testament to the power of prayer, and to the goodness of God.
Adam and I are just about to take off to go see her for the morning...Hope this finds everyone happy, healthy and in love with life.
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5 comments:
(((hugs))) I know Tasha that you and Adam will make the right descisions concerning Bree. Please know that we are all here for you and of course as I told you call anytime day or night if you need anything even if just to talk...
God, continue to watch over Bree and ease her struggles.. Help heal her body so that she can continue to respond positivly to all the help the Drs and Nurses are giving her... please give Tasha and Adam the guidance and strength they need to make the best descisions for Bree...
Tasha.. I am glad that Bree is responding to her new treatments.. and again doing things her own way. The decision you guys had to make was something no parent ever wants to face. You both are amazing and strong parents.
I have Bree in every thought today, and sending strong get better vibes your way. Here if you need to talk.
Hey Tasha and Adam, just dropping in to say hello and that I am praying for God's best. You are in my thoughts and prayers. Call ANYTIME. We love you guys tons. Steven and Cheri and Girls
I don't know what to say but I am thinking of you and I can't believe how strong you are!!! God bless you and your family.
Lynei
Am praying for you all, I was just told of this from a friend Laura (we're in OZ) and wanted to let you know we are all praying for you all over there!
God bless xoxo
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